Treating cerebral folate deficiency is critical to the success of these children.  If the symptoms of autism can be reduced or eliminated, these children will have better educational opportunities and the possibility of independent living as adults.  There simply isn't enough support for the growing number of autistic children who are and will be approaching adulthood. 

Our organization needs the support of our community so that we can continue to help families with cerebral folate deficiency. The children and families affected by autism and cerebral folate deficiency need our help.  

After seeing over 30 pediatric specialists, we found Dr. Richard Frye, M.D., Ph.D. who tested Evan for cerebral folate deficiency.  Dr. Frye's research shows that 75% of autistic boys have a cerebral folate deficiency.  Evan was non-responsive to our touch and wasn't part of our world. We were skeptical at first that treatment of this deficiency would give us our son back but after five weeks of treatment, Evan began to respond.  He started coming to the dinner table for meals and putting his arms out to be hugged.  He even began to use words and sign language to communicate.  After three years of treatment, we have a very different child.  We can go out in public without fear of tantrums and have a very loving, happy little boy.  We also have hope for his future that was nonexistent before treatment. 


As the parents of an autistic boy, we know the pain and hurdles that accompany raising a child with special needs.  We face discrimination from the medical community, difficulty getting child care and even encounter hurdles within the education system. As our child grows, we know that these hurdles will increase.  

We worry about where Evan will live, wonder if he'll be able to work or support himself when we are gone.  This is a growing concern for parents like us throughout the country.  How will we help our autistic children to gain independence?

 

Welcome to the Cerebral Folate Deficiency Research organization.  We are dedicated to researching the connection between cerebral folate deficiency and autism in the hope of finding a cure.  Autism affects 1 in 68 children, according to the CDC with boys being more affected than girls.  More children will be diagnosed with autism this year than cancer, diabetes and AIDS combined.  

Mission

Autism affects 1 in 68 children.

Email for more information to info@cfdresearch.org